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Living with Fibrosing Mediastinitis

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Tuesday, May 15, 2012

Fibrosing Mediastinitis Conference 2012

Posted by Ta at 3:32 PM No comments:
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I Wrote a Book

To give patients, families, and health care workers a better understanding of the causes, treatment, diagnosis,and living with this rare disease.

Available through Red Treehouse Publishing

Contact Me

My name is Tami and I was diagnosed with Fibrosing Mediastinitis in 1999. I am registered nurse and am interested in hearing from others who live with this disease. I love to hear from people.

Feel free to contact me at tjaskren@gmail.com





What is Fibrosing Mediastinitis?

Fibrosing mediastinitis (FM) is a rare disorder characterized by the invasive proliferation of fibrous tissue within the mediastinum.
FM frequently results in the compression of vital mediastinal structures and has been associated with substantial morbidity and mortality.
Its pathogenesis remains unknown. However, in North America most cases are thought to represent an immune-mediated hypersensitivity response to Histoplasma capsulatum infection.

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  • Derailed: A book about living with FM
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