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Living with Fibrosing Mediastinitis

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Wednesday, December 30, 2009

What FM Looks Like


Pretty, huh?
Posted by Ta at 4:22 AM 1 comment:
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Labels: Research Article

Fibrosing Mediastinitis article in Radiographics

Fibrosing Mediastinitis1 — RadioGraphics

Interesting article with pictures.
Posted by Ta at 4:19 AM No comments:
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Labels: Research Article
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I Wrote a Book

To give patients, families, and health care workers a better understanding of the causes, treatment, diagnosis,and living with this rare disease.

Available through Red Treehouse Publishing

Contact Me

My name is Tami and I was diagnosed with Fibrosing Mediastinitis in 1999. I am registered nurse and am interested in hearing from others who live with this disease. I love to hear from people.

Feel free to contact me at tjaskren@gmail.com





What is Fibrosing Mediastinitis?

Fibrosing mediastinitis (FM) is a rare disorder characterized by the invasive proliferation of fibrous tissue within the mediastinum.
FM frequently results in the compression of vital mediastinal structures and has been associated with substantial morbidity and mortality.
Its pathogenesis remains unknown. However, in North America most cases are thought to represent an immune-mediated hypersensitivity response to Histoplasma capsulatum infection.

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Information and Support

  • Derailed: A book about living with FM
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  • Cody's Site: Mediastinal Fibrosis
  • Fibrosing Mediastinitis National Organization for Rare Disorders, Inc.
  • Genetic and Rare Diseases - FM Site
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      • What FM Looks Like
      • Fibrosing Mediastinitis article in Radiographics
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